23andMe changes arbitration terms after hack impacting millions

Lord Evermore

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I can't be arsed to try to find and compare myself, but I'd be interested in what the terms from say, 6 months ago looked like in this section compared to October 4. The filing with the SEC was made on October 10, and 23andMe knew about the breach on October 1. A few days is enough time to make a rushed cover-our-asses change to the terms with little-to-no notification to the users (using existing terms that give the company the "right" to make "minor" changes or some such wording and that users automatically accept them if they don't browse to that web page regularly to check for changes and send written objections within 3 days), and now they're just making the full changes that solidly and specifically protect themselves and sending out notification to make it look like they're being transparent about it.

It hardly even needs to be said that this is unethical behavior and ought to be illegal.
 
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unequivocal

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Fucking binding arbitration. This scourge needs to be addressed immediately, because it is a blatant means of dicking over the consumer and protecting corporations from the consequences of their own mistakes. Binding arbitration should be illegal to force on anyone--maybe only legal for corporation vs. corporation contracts and agreements.
Binding arbitration isn't always anti-consumer.. It's often a much cheaper way to get redress for a complaint - say if you were screwed over by a medium sized business - suing them is really not feasible but entering arbitration can be.

What needs to change imo is making it illegal to carve out class actions. There's nothing incompatible with a consumer going into arbitration in a one on one situation, or choosing to join a class where the issue involves many consumers.. It's eliminating the possibility of the latter process in binding arbitration agreements where most of the harm is created (for society) - and so we should outlaw the practice..
 
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Faustius23

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Beyond opting out of the updated ToC, it's not clear what remedies a compromised customer should seek, because they're not being forthright with what information has been compromised.

I have a affected family member. I'd love to see us get as close as possible to hitting 6.9 million arbitration claims 23andMe needs to defend against. But how do you even get an idea of what damage they've done to you?
 
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KingKrayola

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How do you know if the customer "goes along" with the new agreement if there is no proof they knew about the change? Surely sending an email doesnt count as informed consent? Sometimes emails fail to go through. I dont think you can bind someone to an agreement unless you have some evidence that they actually went along with it. Even if its just a click through agreement that no one reads.
I don't disagree, but slimeballs gotta attempt to slimeball.

There's also a question of was it a one-off transaction where 23andmeandpossiblyNorthKorea happened to keep your info (which would be my interpretation) or an ongoing service provision where terms can change subject to agreement.

Normally you'd expect a take it or leave it clause where if you don't agree you take your data and go somewhere else.

The fact that it appears you can write in and have the better old terms and stay a customer suggests that they are trying it on, or wriggling out of a class action.

IANAL, just a pundit in the peanut gallery etc etc.
 
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GMBigKev

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That's why I really don't like these services. I'm not sending my DNA in, but I have family who has (not to this company specifically, small victories I suppose). Now most of my DNA is in a database somewhere all so my family could learn our lilly white asses came from a mix of a bunch of European countries. Cool? I could have told you that for free.

My wife and I did this when we were younger and dumber. It shook out some very interesting things about us.

For me: It revealed that I'm almost certainly the descendant of a slave through my mother's side. It makes sense cause she's part Pamunkey, and they were known for buying African slaves off the English colonists.

For her: She found out her biological father was not the man on her birth certificate and that her mother's family probably were victims of the Japanese War Crimes in Korea.
 
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Plenipotentate

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What about the class of people (me included) who did not use 23&me but have close relatives who did? It makes me readily identifiable from their DNA. Long-running fugitives from the law have been caught via this vector.

Members of that class have been harmed and signed no ToS. Could be fun!
 
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Unclear if changing the terms now will insulate them from obligations and liabilities incurred when the old terms were in effect? An lawyers here want to give their views?

I would certainly make the argument that the controlling language was the TOS in effect at the time of the breach.
 
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SuaveCriminal

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Is it illegal for insurance (health/life) companies to access this data if ends up on the dark web/torrents?
Access it? Probably. At that point it's basically public record. Can they store and act on it? Depending on your state, probably not. California for example has a couple of laws on the books against genetic discrimination. (they have a long history of that kind of garbage informing those laws.)
 
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SuaveCriminal

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SuaveCriminal

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Your dna is going to be a standard part of medical treatment in the future. It will be out there anyway eventually. If not you, then your kids. That still doesn't excuse a data breach and dodgy handling.

But all of these folks thinking they'll never put it out there aren't realistic.
There's a difference between your DNA being used for health care, and your DNA being in public record for all to see. It's the latter people care about.
 
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ardent

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The sheer gall is infuriating. What a transparently (and yet conversely opaque) way to try and wriggle out of consequences for the their dangerous incompetency.
To be clear, 23andme exists so Mormons can baptize random people who are distantly related to them into the Church without their knowledge or consent.

I really wish that was hyperbole.
 
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To be clear, 23andme exists so Mormons can baptize random people who are distantly related to them into the Church without their knowledge or consent.

I really wish that was hyperbole.
Distantly related? Well, at least that's some improvement! /S

Mormons used to posthumously baptise even Jews who have been – including their whole families – murdered by Nazis in the Holocaust, and I am pretty sure Anne Frank didn't have any living relatives in Utah...

She was posthumously proxy baptised at least nine fucking times, even after the LDS leaders pledged to stop the practice of baptising dead Jews.

I really wish that was a hyperbole as well. The fucking cheek of that 😡

LDS, AKA a child‑molesting, tax‑evading, forced prostitution ring. One now worth billions. Oh, and incidentally also a church, apparently.
 
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snetphilie

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The sheer gall is infuriating. What a transparently (and yet conversely opaque) way to try and wriggle out of consequences for the their dangerous incompetency.
What dangerous incompetency? The TOS update is certainly self serving, but everyone keeps talking about this as if 23&Me was hacked. People reused passwords from other sites and hackers got those passwords and logged in to 23&Me with these ill gotten but legitimate credentials. I don't reuse passwords and my account was not accessed. It would be like suing your landlord because you lent your key to someone else and they made a copy and gave the copy to a thief. Could your landlord have hired security guards to stand at your door, sure, but how are you going to sue when you are the one giving out your key? As horrible of a decision this was for 23&Me, I understand not wanting to deal with completely unfounded lawsuits. How much money would they have to spend just to prove their innocence and have no ability to turn around and sue for false claims and recoup that money.
 
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What dangerous incompetency? The TOS update is certainly self serving, but everyone keeps talking about this as if 23&Me was hacked. People reused passwords from other sites and hackers got those passwords and logged in to 23&Me with these ill gotten but legitimate credentials. I don't reuse passwords and my account was not accessed. It would be like suing your landlord because you lent your key to someone else and they made a copy and gave the copy to a thief. Could your landlord have hired security guards to stand at your door, sure, but how are you going to sue when you are the one giving out your key? As horrible of a decision this was for 23&Me, I understand not wanting to deal with completely unfounded lawsuits. How much money would they have to spend just to prove their innocence and have no ability to turn around and sue for false claims and recoup that money.
Are you just dumb, an idiot, a troll or a paid dumb idiot troll? Please check any and all that apply.

Read the fucking article again and read the actual one about the hack before that, it's all linked in TFA.
 
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Oak

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redraider0807

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I really wish some group of users would work together to show them why class actions even exist as this catastrophically backfires. Each and every individual user should start a claim against them, and bury them in duplicated legal work that only would have needed to be handled once if it were in the form of a class action.

Sadly, the recoverable damages probably aren't worth the cost of a lawyer, so that's not likely to happen...but I can wish.
Everyone affected needs to file an arbitration claim on them. It’s $2-5k per claim and even if they win all of them it’s far more expensive than litigation and in the T&C it usually says the company will pay. Get a 100,000 people to do it that’s $200 million at minimum plus their costs for actually fighting each claim and any damages on top. They’ll be begging for a class action
 
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jesup

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It's funny you say this. My little sister did one of these services (thanks sis! you just gave away everything for the entire family blood line). My other brothers and sisters were so excited about the results that they submitted their dna too. In the back of my mind I was wondering, 'do you expect it to be anything different??? we have the same mom and dad' :)
Each of them inherited a random 50% of each parent's DNA (plus any unique mutations, perhaps). One child might get a bad gene from the parent, and the other not.
 
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What dangerous incompetency? The TOS update is certainly self serving, but everyone keeps talking about this as if 23&Me was hacked. People reused passwords from other sites and hackers got those passwords and logged in to 23&Me with these ill gotten but legitimate credentials. I don't reuse passwords and my account was not accessed. It would be like suing your landlord because you lent your key to someone else and they made a copy and gave the copy to a thief. Could your landlord have hired security guards to stand at your door, sure, but how are you going to sue when you are the one giving out your key? As horrible of a decision this was for 23&Me, I understand not wanting to deal with completely unfounded lawsuits. How much money would they have to spend just to prove their innocence and have no ability to turn around and sue for false claims and recoup that money.
BTW, you have zero idea if your account information hasn't been accessed. From TFA, reportedly using just 1,400 stolen credentials, the hackers accessed plenty of PII of at least 6.9 million (!) of other users whose accounts weren't ever compromised in the way you surmise.

Including, per TFA, "name, birth year, relationship labels, the percentage of DNA shared with relatives, ancestry reports, and self-reported location".

Snug you may be, but are you really sure your PII wasn't part of that leak? Because statistically, it most likely was, as it's over a half of 23me users' data at the time...

Your really dumb landlord example would be better if you just said that you gave AirBnB your holiday cottage keys and agreed to let only vetted renters in, only to find out all of them were hacked, their keys stolen, all your PII kept in the bedroom now being on the open market and your rented out cottage full of some shady drug characters dealing drugs out of it...
 
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graylshaped

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Unclear if changing the terms now will insulate them from obligations and liabilities incurred when the old terms were in effect? An lawyers here want to give their views?
My late dad asked me to do a genetic check on my son. I chose the anonymous option, and the results for him from our mixed marriage were mostly what we expected.

The idea that 23 and me who holds intensely personal data, would not anonymize and protect it, should be a company killer.
 
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InIgnem

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If any of you need an email template, here's what I wrote:

Pursuant to Section 5, Paragraph i, I, <name>, of the account for ***************@gmail.com, hereby opt-out of your arbitrary and stupid "arbitration and class action waiver provisions" as set forth in your TOS update dated November 30, 2023.

Do better by your customers and secure your data please.

<me>

(Source: I am a lawyer and I hate this stupid crap done by these companies)
 
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enduro

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82
I don’t want your smelly check for $0.35. The point was for the company to feel our rage in the wallet. If companies are going to cut off legal repercussions for sleazy actions, We are just going to take those issues to congress.

Instead of a slap on the wrist fee, they can defend the legality of the entire business models.
 
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Dzov

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I don’t want your smelly check for $0.35. The point was for the company to feel our rage in the wallet. If companies are going to cut off legal repercussions for sleazy actions, We are just going to take those issues to congress.

Instead of a slap on the wrist fee, they can defend the legality of the entire business models.
The company can't really feel anything. How about we penalize the executives that made the decisions that led to this point? Although I'm sure some guy in IT would ultimately get stuck with the blame.
 
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snetphilie

Smack-Fu Master, in training
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BTW, you have zero idea if your account information hasn't been accessed. From TFA, reportedly using just 1,400 stolen credentials, the hackers accessed plenty of PII of at least 6.9 million (!) of other users whose accounts weren't ever compromised in the way you surmise.

Including, per TFA, "name, birth year, relationship labels, the percentage of DNA shared with relatives, ancestry reports, and self-reported location".

Snug you may be, but are you really sure your PII wasn't part of that leak? Because statistically, it most likely was, as it's over a half of 23me users' data at the time...

Your really dumb landlord example would be better if you just said that you gave AirBnB your holiday cottage keys and agreed to let only vetted renters in, only to find out all of them were hacked, their keys stolen, all your PII kept in the bedroom now being on the open market and your rented out cottage full of some shady drug characters dealing drugs out of it...
Oh, they definitely got my information, at least the information that I also publicly share on a half dozen various genealogical sites. So going back to your "dumb Airbnb" example, it's more like the neighbors Airbnb was hacked and the drug dealers came into my yard and looked through my windows. They could have learned more about me by looking at my LinkedIn profile. Already this year, an escheatment services provider for one of my financial institutions (escheatment reporting is required by law), was hacked. Well guess what information of mine was stolen... my full name, date of birth, list of prior and current addresses, phone number, social security number, and mother's maiden name. It only took a week and someone was already trying to commit Medicaid fraud with my information. Comparing that to losing already public information or to people hacked because they reused passwords is an apples to oranges comparison.
 
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D

Deleted member 1061767

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It's funny you say this. My little sister did one of these services (thanks sis! you just gave away everything for the entire family blood line). My other brothers and sisters were so excited about the results that they submitted their dna too. In the back of my mind I was wondering, 'do you expect it to be anything different??? we have the same mom and dad' :)
A lot of people end up getting the shock of their lives with these tests NOT being consistent with the familial structure they expected. There's a reason little Susie bears a resemblance to the mailman.
 
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